2 days ago
Sunday, February 15, 2009
No Answers For Me
Well there has been a lot going on lately. The kids are groing like weeds. The other night I was up feeding Becca and Alex got up and was crying that he had a hurt legg. I finished feeding the baby and tried to give him some medicne, but he would not take anything so I made him go back to sleep. I had been a sleep for one hour when Lizzy fell out of bed so I got up and put her back into bed. An hour later Becca was up feeding and Alex came out and was crying again. I finished feeding the baby and then I forced Alex to take some medicne and he want back to sleep. I was then woken up two hours later and feeding Becca. You could say that I was tired the next day. I then called the dr to have them see Alex. I told them that I thought that he had strep again because he had, had a runny nose for over a week. He ended up having strep again for the third time since November. Then I ended up talking to the dr about the test that he was having to see if he has Cornella-de Lange Syndrome. The dr asked me if I had heard anything yet I told him that I had not. He then told me that the older that he gets the more he looks like he could have it. We ended up talking about it for a little while about it. I ended up e-mailing his other dr and he ended up e-mailing the dr who was doing the study and he asked me to take some photos of Alex and he also told me that he didn't have any answers so we have to wait longer to see if he has the syndrome. I wish that I knew if he had it or not it had been over a year since they took his blood to be tested. I guess that I can wait longer if I have allready waited this long.
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1 comment:
That has to be so frustrating! Keep us posted if you ever do find anything out! I love the picture of the kids in the wagon! Priceless!
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